Good Sarcoma Resources!
http://www.liddyshriversarcomainitiative.org/Sarcomas/sarcomas.htm
The Basic Question (the Basic Answer as we all know is 42)
Because so few people are aware of sarcoma, many of them will ask you, "What is sarcoma?" Some simple "Sarcoma Facts" are listed below. We have used them in numerous conversations with people to help address that question.
What is sarcoma?
It is a cancer of the connective tissues, such as nerves, muscles, cartilage, joints, bone, or blood vessels. It can arise anywhere in the body, frequently hidden deep in the limbs.
How prevalent are sarcomas?
About 1% of all adult cancers are sarcomas.
Between 15-20% of all children’s cancers are sarcomas.
There are hundreds of thousands of patients and their families struggling with sarcoma world wide
How are sarcomas treated?
When possible, sarcoma patients have surgery to remove the cancer. Surgery is often combined with chemotherapy and/or radiation.
Why are sarcomas dangerous?
They are often misdiagnosed. Sometimes they are thought to be sports injuries.
When they are diagnosed, they may be large and difficult to remove surgically and they may have metastasized.
Many sarcomas resist current treatments.
And treatment information: (note that the most aggressive recommended treatment that I have received, mainly because there is no data is: hysterectomy, removal of lymph nodes for biopsy, post surgery radiation and chemotherapy - even though it seems that they don't really know whether that's a good idea or not)
And from our friends the Brits!
http://www.cancerhelp.org.uk/help/default.asp?page=4568
And an incredibly useful statistics page with no stats at all!!!!
http://www.cancerhelp.org.uk/help/default.asp?page=4569
The Basic Question (the Basic Answer as we all know is 42)
Because so few people are aware of sarcoma, many of them will ask you, "What is sarcoma?" Some simple "Sarcoma Facts" are listed below. We have used them in numerous conversations with people to help address that question.
What is sarcoma?
It is a cancer of the connective tissues, such as nerves, muscles, cartilage, joints, bone, or blood vessels. It can arise anywhere in the body, frequently hidden deep in the limbs.
How prevalent are sarcomas?
About 1% of all adult cancers are sarcomas.
Between 15-20% of all children’s cancers are sarcomas.
There are hundreds of thousands of patients and their families struggling with sarcoma world wide
How are sarcomas treated?
When possible, sarcoma patients have surgery to remove the cancer. Surgery is often combined with chemotherapy and/or radiation.
Why are sarcomas dangerous?
They are often misdiagnosed. Sometimes they are thought to be sports injuries.
When they are diagnosed, they may be large and difficult to remove surgically and they may have metastasized.
Many sarcomas resist current treatments.
And treatment information: (note that the most aggressive recommended treatment that I have received, mainly because there is no data is: hysterectomy, removal of lymph nodes for biopsy, post surgery radiation and chemotherapy - even though it seems that they don't really know whether that's a good idea or not)
And from our friends the Brits!
http://www.cancerhelp.org.uk/help/default.asp?page=4568
And an incredibly useful statistics page with no stats at all!!!!
http://www.cancerhelp.org.uk/help/default.asp?page=4569
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